It’s a New Year!
Quite honestly, I’m very happy to be here….more than I can express
I’ve had to begin a new page here, for the other one was becoming impossible to edit.
Hmmm, methinks that the intentions of adding pages to a blog are not that they run on and on..and on! Too bad that I can’t have ‘regular’ blog options when adding a new page..but this is how it is and I really can’t create a new blog for my updates..what a mess that would be to transfer everything. Anyway, my story from the beginning – 2008 thru the end of 2010 – remains.
Here we go into 2011!
I will try my best to answer your comments. Yes, I was pretty lacking in that department and I wish I had a good excuse..other than being overwhelmed by everything. Know that I count you All as having played a part in my longevity! Your warm wishes and prayers most certainly went into action and I Thank You With All My Heart ♥
My other page describes first being diagnosed with a sarcoma called ‘Undifferentiated Uterine Sarcoma..also known as Endometrial Stromal Sarcoma’ .. through time and more opinions by specialists in sarcoma, my diagnosis was finally confirmed to be Uterine Leiomyosarcoma (uLMS for short).
You can read more about uLMS here
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Because this is a ‘Page’, the heirarchy of posts will be ~ newest at the bottom. You’ll have to scroll down to find this symbol, signifying a new addition to the page:
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January 13, 2011
Nothing to report, all is well ![]()
I have a scan coming up soon and it will be before my next treatment (Jan. 27 & 28)..hoping to see more shrinkage.
Until that next update, I have some images to show you. They are xrays of my left shoulder/collarbone when my situation was first discovered by the orthopedist…and what my collarbone looks like now. Recall that I told you that the bone was regenerating?
First the cancer destroyed much of my collarbone..now, the bone has encased the cancer..it’s wild. There’s a pretty large tumor in there, described as measuring 4-5cm in length, 3-4cm in width.. but hoping that the last zap of radiation has knocked the wind of out of it ![]()
*hoping these won’t skeeve some of you out
here is a normal shoulder xray (not mine)
images comparing my shoulder from May 2008 and December 2010
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January 25, 2011
Saw Dr.Jazz for results of the CT scan (done Friday) and, while I so hoped to hear of more shrinkage, I was told that I am stable. No shrinkage ![]()
Yes, I’m disappointed even though I’m stable. I had really, really wanted to know that the chemo was still kicking butt in there (my lungs).
This isn’t to say that there won’t be more shrinkage in the future… I wanted to trust that the tumors would get much smaller so that, when the crap hits the fan again (i.e. = growth, showing that the chemo has failed), there would be more ‘room’..and to get that big tumor from compressing my heart.
I will be going to Froedtert this coming Thurs/Fri for treatment and look forward to words of hope from Dr. Charlson. Maybe he’s seen this plateau before, with a surge of shrinkage afterward. I hope so
I brought along the pictures of my shoulder xrays, to show to Dr. Jazz. He shook his head in wonder ![]()
I asked him if there may be a problem in the future, if the bone grows so that it impinges on the other bones. He agrees that may happen but we’ll just have to wait…
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January 29, 2011
Had a bit of a low week after getting the news that the lung tumors hadn’t shrunk as before. Being Stable is Good News..but I just so wanted further, dramatic shrinkage. Yes, I set myself up for a fall *sigh
When I see Dr. Jazz for results of a CT scan I always request the written report for myself. I cannot get the report until after the scan has been reviewed with me, by Dr. Jazz. Knowing that this is MY body and MY report, you’d think they’d allow me to review the written report before I see my doctor, so that I can have a handle on the info and have questions available and to bring up a fact or two that is in the report. They have fear that I’d jump to wild conclusions, misinterpretations, and fall in a big, black hole or something. Anyway…
I finally got to see the report when I arrived in Milwaukee. Dr Charlson and his PA both saw me and both were very surprised that I was a bit low about the results. I explained my feelings, my anxiety..concerns and worry. Then I told them I hadn’t seen the report yet = that the staff at GB Onc couldn’t get the computers to release it for me after seeing Dr. Jazz . . some glitch.
They got the report and showed me..and I saw what was left out at my meeting with Dr. Jazz. I don’t blame him..he’s a busy man and he must have just not noticed or he’d forgotten..
This is what jumps out as so positive and what Dr. Charlson and his PA wanted me to see ..describing multiple pulmonary (lung) nodules:
“These appear partially calcified.”
I looked at them both as I said that..and they both nodded and brightened their eyes.
Yes, this means tumor cell death. The tumors are dying.
I bring along the CT scan CD for Dr. Charlson and he brought it up on his screen..and was happy to see that the December scan was included..so he had side by side to compare..and he liked what he saw. It pays to have another pair of eyes and I’m very thankful that he always wants to see the actual scans. He takes a lot of time with me.. he’s very involved, very caring, very informative, he’s a great Doc. He’s very pleased with my progress and will see me again in mid-February.. my next treatment.
So! The words of Hope I was seeking from this visit with Dr. Charlson and his PA came and were better than I’d wished for ![]()
I’m back in my happy bubble.. lalalala..la la ![]()
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March 23, 2011
I didn’t have chemo in Milwaukee, as planned, two weeks ago.
Instead, I was hospitalized locally for several days.
I’m home now and I feel fine..here’s what’s up:
A week before my last chemo (in February) I realized that my port was infected. Dr. Jazz put me on oral antibiotics for 10 days. Dr. Charlson in Milwaukee, agreed that I could have the chemo while taking the meds. He extended the prescription for another ten days. The infection appeared to be cleared by the time I arrived to Milwaukee but he wanted to play it safe, since chemo would lower my immune resistance.
I finished the meds and all was well.. then Bam..the infection came roaring back, ten times worse than previous. My neck/lymph nodes were very swollen and hard, painful, ..everywhere around the port was red, swollen, and tender. It looked like I had a goiter .. not a good look
Dr. Jazz switched my antibiotic to a stronger sort, in hopes that we could knock it out. After a week, it was still somewhat swollen and inflamed, so he and Dr. Charlson decided I shouldnt have chemo. They, too, decided that the port should come out and I should go into hospital for IV antibiotics.
Wednesday I was admitted and they took out my port. Cultures were taken. Friday I had a PICC line installed in my arm, a temporary measure for IV antibiotics and chemo..until the infection is cleared and I can get a new port installed.
I am now a proud owner of an IV pole
It and all antibiotic IV supplies were couriered here from Milwaukee, a local Home Health Care nurse showed me how to hang the drip.. and I had to do this every eight hours for ten days. Thankfully it’s not a staph bug so that saved me from having to IV for six weeks, as well as miss out on the chemo that keeps the tumors at bay.
The infection is now cleared and I look forward to resuming chemo Tomorrow and Friday! Yes, I actually said that I welcome it.. Hey! It’s my miracle potion = no complaints!
On a positive note = I had a CT scan recently and I remain Stable ![]()
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April 13, 2011
I have to say.. = I’m so freakin lucky
..*I won’t go into detail.. just know that I am!
..after that pronouncement? I feel a jinx, so will knock on wood
*tap tap tap
ok.. let me take a breath *In.. hold.. Out
……
I have 4 sisters!
My eldest sister is my charm! I adore her. I tell her in jest? no, it’s true. I tell her that she is my surrogate Mother and she appreciates it.
I love her! She’s always been my anchor.. she IS my Godmother.. and my Big sis.. my surrogate mom
hahaa..
I’ve been through a lot since February. oy! antibiotics to the degree that I now have thrush.. *sigh. Three surgeries (the last one a week ago). Yes! they weren’t major but they invade and disrupt.
I count my blessings each day..
I do
but I need a break!
so.. I will have chemo tomorrow and Friday.. hang out and sleep and all that, for a few days..
and then?.. when my vigor and my taste-buds return:
I’ve arranged for my eldest sis and me to have a luxurious lunch with a bit of indulgent shopping!
I can’t wait!!
This lil interlude will signify, to me, the end of a few months of CRAP!! hahaa
I want to see this as a NEW beginning… and it is SPRING, after all
yes!! yeehawww! .. let’s GO!
New beginnings.. dust off the Winter.. Spring is here!
..plus? She’s just so darn loving, fun, and sweet! I yearn to spend an afternoon with her, all to myself
much love to you! ALL
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May 03, 2011
everything.. has.. gone wrong
I had a funny feeling when I bought a new pair of jammies to wear for my treatment stays in Milwaukee.
I had the same foreboding when Bruce came home with a ‘gently used’ overnight bag with wheels = that a customer gave him at the Enterprise counter.
..like a jinx feeling.. ‘don’t get too complacent and comfortable’
I won’t be wearing those jammies in Milwaukee nor using my wheels to get my bag from the parking facility to my room at Froedtert.
I’ll be off the trial now.. the Yondelis has stopped working ![]()
I had a CT Friday and had that feeling.. foreboding.. and that instinct was correct. The growth in my lungs is firing up. I have no new tumors elsewhere.. just the damn lung tumors that are so willful as to not lay down and sleep.. nor die.
What now? I don’t know.. cry? yeah..
I’ll be talking with Dr Charlson’s nurse soon (today) and possibly with Dr Charlson, himself. I think I still have to go to Milwaukee to give them the scanCD and to sign out of the study.. what a long trip that will be
I will ask that Dr Charlson (Milwaukee) remain my doctor, since he’s a sarcoma specialist.
Dr. Jazz welcomes his and Dr Bailey’s (UWMadison) input of what to do with me, next .. as do i ..I’m going to need their help
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May 06, 2011
Two postings..catching up as of last Friday (may 06) and Monday (may 09) ..
I had a tough week.
But.. watching this video ..oh.. about 50 times a day certainly cheered me up ![]()
Today Bruce and I met with Dr. Charlson/Milwaukee…along with two of his staff. We spoke of options, ideas, and Hope.
We talked for an hour. The guy is interested, focused, and makes me believe that I am his only patient. There is no rush, no looking at his watch.. he is there..present..involved..confident.
I walked in with an idea of how I wanted the consult to go and he more than met the challenge. I left with Hope and am much more secure with knowledge of what the next few months may bring. It doesn’t appear so bleak now.
With some information I sent him, after returning home .. that he’ll be discussing with Dr. Jazz before Monday = we should have a plan of treatment to be implemented very soon. If the first plan doesn’t pan out, we have a second plan.
While these plans are in the works, we’ll also be considering a ‘fresh’ biopsy to send to a lab.. to test for potential targeted therapy. In short, seeing what cells, etc. make up the tumor and what drug may be the Ninja to wipe the scumbags out. More on this when I have better info..
I also will probably have another ultrasound of the vein into which the new port is implanted. I may have a clotting problem…as in, my blood clots too readily. If I do, I will need to take daily belly shots of blood thinners for the rest of my life = if the port remains. If the port is removed, no shots. I don’t relish the thought of taking chemo into my veins/arms..so I’d hope that I can keep the port and stick myself every day. That is, IF I’m found to have a problem. Again, more on this when I know..
Once our consult was over, Bruce waited in the car while I made my way to the floor at Froedtert, where I was housed for my treatments. I was able to say goodbye and my thanks to a few of the nurses and most especially, to the Nurse Practitoner ~ Becky. She had big, wet eyes and I told her “don’t you cry!”. I didn’t want to become a big, sloppy puddle myself. She spent so much time with me, more than just a ‘nurse’ when I was having treatments. She got it, she listened, she pushed me in positive ways, and most of all = she cared. I promised to come back.. that we’d not say GoodBye
Now, she’s not my nurse, she’s my friend.
and.. I will be back to Milwaukee. Dr. Charlson will remain my doctor. I asked and he said “you are my patient”. Just a statement of fact.
He knows sarcoma. I need him, as does Dr. Jazz. I’m in very good hands ![]()
Even though I’m so glad this day is behind me, it was a good day.. a very good day
May 09, 2011
I met with Dr. Jazz today and we went over everything Bruce and I discussed with Dr. Charlson.
Dr. Jazz and Charlson agreed that the combo he (Dr. Charlson) was thinking of wouldn’t work.. because I had one part three years ago, as part of my first chemo-combo, and it didn’t halt growth.
I suggested that Dr. Jazz speak again with Dr. Charlson to ask if the 2nd part of this new combo (that I haven’t had) be given as a single agent.
It is ‘Navelbine’
He called me a few minutes ago and says that Dr. Charlson thought it a good idea. Go me ![]()
I begin Wednesday and will get it weekly. We’re thinking to go with it for 8 weeks and then take a break for two. Also, we’ll scan at that time.
I’ll have another ultrasound tomorrow of my port vein = hoping not to find clots forming. If we find clotting, I’ll have to begin taking daily shots of Lovenox, a blood thinner.
Hope not…
The stress of the past week is getting to me. I am sporting a cool cold sore, had a ‘visual’ migraine this morning, and my heart is playing the drums again (palpitations)..constantly
..*phew… sure am hoping this all works out well
….
Oops, almost forgot.. the biopsy for testing toward targeted therapy/molecular profiling :
Dr. Jazz is very leary.. Dr. Charlson had already expressed major concern about needing a fresh biopsy since it would have to come from my lungs. He hoped we could get a biopsy from the tumors in my butt muscles.
Going into the lungs, not only does it sound like so not fun, but it’s also very risky. It can cause pneumothorax, infection, etc.
Dr. Jazz spoke with the radiologist today, who told him we’d have to get lung tissue and would need 6 needle core biopsies. Six times into my lungs…
eek ![]()
yeah, I guess we’ll be shelving that idea for now
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July 13, 2011
I saw Dr Jazz later that day.
News is not good
The treatment didn’t work whatsoever..the stuff is growing.. most worrisome is the tumor in my right lung that is impacting my heart.. though, looking at the CT, it’s quite overwhelming to see so many tumors..so big..everywhere
I knew it would not be good news.
I was promptly brought to a room for my visit with Dr Jazz… and I could hear him, his muffled voice, in another room with a patient. I heard him say goodbye. Then he goes to his office and records his notes.. then would look over my CT report.
Normally, and with hopeful news, he’d be in to see me within 10 or 15 minutes.
Today, I sat there.. and sat there. Time ticking away. Minute after minute I knew it was bad and he was looking at the scan.. probably steeling himself, too, to tell me.
I waited nearly an hour…as the time ticked off, each second became torture .. “just come and tell me already!”
I did say that aloud a couple of times.. trying to relieve stress.
I’ve become accustomed to reading his face when he enters..and his voice.
If a scan isn’ t great, he enters with a look of concern..intense
If a scan is good, he enters with a bright face and his voice very loud
Today, he entered and sort of bent down with a grimace on his face.. his voice was nearly a whisper
Not good…but, by then, I already knew
Options? Nothing spectacular. There is one chemo left to try, that was mentioned through the molecular profiling.
I asked about a newer drug that we know of..it’s not a chemo but a VEGF inhibitor. It is approved for renal cancer but they’ve had some trial success with it for sarcomas. The staff has already begun the process of inquiry to see if our insurance will approve its use.
It will turn my hair white! I told him that wouldn’t bother me in the least since I’ll never get to be an old lady – along with the white hair
*Often, I see older women and realize I’ll never ‘be one’.. so I would enjoy the white hair, most especially if the drug helped!
I asked that he consult with Dr Charlson/Froedtert. He agreed to do so and will call me by Friday.
so.. I’m ok.. I sort of knew this was coming. I could feel a change in my lungs for about a month. Like a thickness.. congestion..more breathlessness with exertion, etc.
I’m not so much sad (well, yeah, a bit) as I am resigned.
I’m not giving up but I am accepting that my time is running out.
There are frightening possibilities ahead: pleural effusion, pericardial effusion, collapsed lung, pneumonia, or something so simple as in not being able to breathe.
>I wrote the above late Monday night.. Yesterday, came this:
I received several calls : from oncology staff, from the company that will handle the Votrient, from Dr Jazz.
Our insurance has agreed to cover the Votrient
The co-pay is reasonable and I will have my first supply delivered to me Thursday morning (July 14)
I will take it twice a day, as consistently as possible.
Monday, July 18, I will have baseline electrocardiogram, urine, blood work-up/liver and kidney, and blood pressure recorded.
I will have to be monitored for heart, kidney, and liver function throughout treatment.
I will have to take my blood pressure every day.
Now, let’s hope it helps me out.
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July 18, 2011
well, this getting used to the possibility of ‘end of life’ is definitely a process.
“Wait a minute! This isn’t supposed to really happen to me.. Right?? I’m going to be different..I’m not going to die from this.. not me. am I??”
I wish I had a magic key to turn it all off. I wish I could twinkle my nose and make it all go away.
Instead, I meet with Ruth at GBOncology today.
Ruth, the PA who cries so readily. Ruth who is so very compassionate and wears her heart on her sleeve.
Reality check today. Another step in the process of acceptance.
Ruth went through about 8 tissues.
She’s going to get me set up with Palliative Home Care. She stressed to me that it is Not Hospice.. but a precursor. They will assist me with preparation for Hospice (when I’ll need it) and they can help me with anything I may need, even nurse visits if I have a concern – rather than schedule an appt. with Dr. Jazz or a nurse. They can have a counselor visit me if I need to talk to someone who ‘gets it’.
I have to admit the idea crossed my mind a few days ago “maybe I should get set up before the shit hits the fan’
Reality is creeping in.. “yes, I can die from this and possibly too soon”
The worst is that I can feel the results of the tumor impacting my heart. It’s most noticeable now, when I bend over. It pushes into my trachea and throat.
I have a cough at about the same location that hurts.
I asked for clarity today = about why we are going with the Votrient now, rather than hit it with the hard stuff, the Ifosfamide.
She says that the reason is that the Ifosfamide is very harsh and caustic, and if my system can’t handle it or if it hits my organs and blood marrow very hard, I will need recovery time and then I wouldn’t be able to have anything.
If I do the Votrient first and it fails, I can then do the Ifosfamide without having to wait for my body to recover.
Not comforting news ..I know
I’ve had all my baseline tests this morning and will be beginning taking the Votrient today
Also, I found out that I have a healing fractured rib! Last August, when I had such pain and couldn’t breathe.. they first looked for a blood clot in my lung…then we found it was a new rib lesion. What I didn’t know (until the radiologist remarked about it in my latest CT report) is that it was fractured. Makes so much sense now.
The good news is that it seems I can eat anything I want without gaining weight!
.so I stopped at the Sunny Hill Farm truck and bought some delicious strawberries, blueberries and the biggest, tender kohlrabi. No, none of that is going to make anyone fat. but eating is a great pleasure and I’m going to go for it. The whipped cream is going on thick..
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(sweet corn by late next week, they hope!)
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October 19, 2011
Ughhh! I know.. ‘where have I been?’
Truth .. I’ve been so involved with everything and nothing? I’ve been coping by just focusing .. focusing on simplicity, the moment, quietness, cooking/mastering Thai & Vietnamese, baking breads and bagels, watching the bluebirds dance in the air .. living
I canned dill pickles, I made and froze tons of basil pesto, I picked wild elderberries, twice, and made extraordinary jam with apple pectin I made myself, I made and canned a dozen quarts of delicious, garlicky, pasta sauce and packed up 8 quarts of oven-dried roma tomatoes in olive oil.. fun stuff and took my mind off of, well.. most everything that has wanted to weigh me down.
The past months have been very stressful but I’ve weathered them.. not easy but I had to. I didn’t want to fall into a dark hole and not find my way out.
Thank goodness for my happy Bubble!!
First the Yondelis failed (April)..then Navelbine had no effect.. then Votrient failed..but it first cause all my hair to come in white/everywhere. The Votrient succeeded in stability with the smaller lung mets but I had growth of 40% in the larger mets. Of course those bastards were immune..why not? Freaking disease
I have recently completed two three-day courses of another chemo = Ifosfamide. It isn’t as bad as I was fearing. Really, I’ve had worse! The worst was the first round. I had to be hospitalized for the three days (how I HATE being confined!). They wouldn’t allow me to leave the floor. Sheesh, I felt like a dang inmate.
Thankfully, I didn’t have hallucinations or any psychotic moments (other than wanting to spear the night nurse who turned on the overhead Emergency lights at midnite! ..my God, that hurt, I couldn’t even open my eyes for the freakin pain..grrr..idiot!) .. no coma.. no sickness. Yes, they had to do the treatment this way in order to monitor me. I understood but begged to be able to continue treatments outpatient. And I am! I can go home after each 8 hour day.. blech, long days..but outpatient! (yay). I took my Nintendo system along and played all day, each day which really made the hours fly
I’m still with Hospice and it’s been so helpful. It’s taken so much concern off my shoulders.. and I like my nurse, Jessica, very much. I am just getting to know my social worker, Susan, better.. but she’s been off for her wedding and honeymoon.. we had a long, lovely meeting just days ago and yes, we’ll do fine together.
I’m bald again.. and it’s not so bad this time. It has many pros, like no need to do anything with hair products, driers, irons, etc. Letting the car windows down.. no mussed up hair. It’s easy breezy
I bought new, bigger scarves and tie them at the side of my neck (not in back)… so I look more ‘fashionable’.. and! more like a pirate, hahaa. My girlfriend gave me some big silver hoops to finish the ‘look’.. arrr matey.
*sigh, now the serious stuff
Tomorrow I will have a CT scan to see if this latest chemo is helping.
With so many recent failures, I have been determined this time.. not to be hopeful.. as well?.. I’m not giving up. I am in zen mode.. choosing to stay in the middle of the road.. not veering off into fear nor high hopes. To have hope and find out that things are worse is simply too emotionally terrible.
I don’t want to feel that again, so afraid and so low. Yes, zen is where I am.
The last scan.. Dr Jazz was just a wreck. So sad. He spoke to me of considering my quality of life.. if this chemo doesn’t help. He spoke to me of choosing to end all treatment ..if this one doesn’t help. He is preparing me.
I took the hint and have been preparing. Zen, rae.. zen.
For the first time ever, instead of reaching his hand to me to shake mine.. he opened his arms and invited a hug. I can cry just thinking of it. He gave me a long, warm hug and told me how sorry he is that we’re nearing the end of the road.
yeah! Then I have to walk out into the waiting room and hold myself together?? Not happening folks. I think he must have a button to alert everyone out there, all the receptionists. They surrounded me, literally. We all cried and hugged.. it was pretty awesome but you’re still in a public place and so vulnerable
So, with that said, I’ll leave it here… losing my zen thing
I will be back tomorrow late day.. or maybe Friday with my results
♥
…………………. * addt’l news * …………………. October 20, 2011
Had my scan and saw Dr Jazz..
Good News, Finally!!
My tumors have shrunk! The dictation by the radiologist wasn’t written yet, but I saw the scan from Sept. against todays..and the shrinkage was visible. We’re assuming at least 15% less
So! I’ll see it snow again.. hopefully celebrate my birthday in January.. see the new Spring?
All of those moments were in jeopardy.. t’was hard to accept that I could be dead in some weeks or months. Surreal.
Dr Jazz (being a buzz-kill) assured me that this sarcoma will take me one day.. it will happen. Sure, but maybe not so soon..and maybe not before some new treatment is found to be effective against this subtype of sarcoma. I’ve been given Time..and so hope that there will be further shrinkage of lung mets.
Monday I will begin my third round of Ifosfamide/Mesna for three days and not complain one bit! hahaa
I can barely wait to wake up tomorrow! This heavy (subconcious) dread will be lifted.. but I’m staying in zen mode and dwelling in the ole, comfy Happy Bubble.. joyfully
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November 03, 2011
http://lithomax.com/SnowglobeCaper/index.html
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►December 26, 2011
I hope you all had a lovely and Merry Christmas and a warm and Happy Chanukah!
I certainly did
My present came on Friday, the 23rd… in the form of a very excited and LOUD phone call from Dr. Jazz.
*Recall once, I told you that when he has good news, he speaks very loudly?
I had a scan that morning and wasn’t expecting to get the results until tomorrow, the 27th.
Dr Jazz was speaking so fast he was tripping over his words: “It’s good! All the tumors have shrunk.. I’d estimate at least 20-30%!!”
He spoke of how he dreaded seeing my scan come in.. he didn’t expect good news..
But we got it! and now you know it too
I’ve been smiling ever since.. and will begin my three day treatment again, tomorrow
.. Happily ♥
Thank you All for supporting me and for your prayers and healing vibes.. they Work!
I dearly appreciate your part in this, My Friends





159 comments
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January 24, 2011 at 4:07 pm
Tess
Hey Rae.That x ray is unreal.
You have been through so much these last couple of years,your positivity and strength are amazing.We[your on line friends]are here willing you on.
Hope the radiation worked its magic.
Big hugs[gentle ones]
Tess xoxo
January 25, 2011 at 10:39 am
rae
hi Tess
amazing what the body can do without our input and awareness, isn’t it?
I showed those images to Dr.Jazz just yesterday. He was captivated and awed by them. Even a Doc is blown away by how our bodies can heal around devastation
January 25, 2011 at 7:48 pm
Carma
Rae, I rememeber when you first started to complain of the shoulder pain… and you were taking handfuls of ibuprofen. I’m not active in any psp groups lately… but I have checked here a few times to see how you are. I’m so happy to have been promted to check in today and find that you updated, today. It actually set me back in my chair! I’m not suprised that you are still fighting with all you’ve got, although I hoped you would’ve beaten it by now. Anyway…. just stopping by to say Hello and wish you some extra strength… ♥
Carma
February 8, 2011 at 12:28 am
Betty
Hi Rae, I was at your site checking out your tubes and working on another tutorial so thought I would drop in and see how you are. I’m glad you had good news. You are so positive and so determined to win this battle, you deserved something positive to happen. Warmest wishes for lots more good news. We’re all praying and thanking of you daily. Also thank you again for the tuts and all the other goodies on your site. Its one of my favorite places to visit.
February 10, 2011 at 3:48 pm
Robyn
Rae – reading that those tumors are calcifying/dying has brought tears to my eyes this morning – to read this good news after feeling how down you were in the previous post – well … (((((((((((((((big hugs)))))))))))))))))) and a happy dance once i quit these silly tears
*have had to correct so many typos cos the page is blurred lol
great news – a little win now and then sure does brighten the day
Robyn x
February 20, 2011 at 5:44 pm
Pam
Rae ,what good news..I could feel how down you were and then you lifted my spirits as yours were lifted,such good news..but then you have been walking good news..Stay strong ..my continued good thoughts and prayers are with you.
February 26, 2011 at 5:47 pm
Ann
Wow that’s fantastic! So happy for you.
And no I’ve never commented here before but felt I should. Hope you’re getting better every day!!!
February 28, 2011 at 9:51 pm
Sandi
I found your blog searching for adriamycin. Then I started reading and found your post on meeting a woman who found out she had Hodgkin’s two weeks after finding out she was pregnant. That is just so odd because this is what happened to me! I was diagnosed in May of 2007. I had found out I was pregnant two weeks before. My last treatment though was in October of 2007 and I had radiation in December. My baby was born healthy and well. She is 3 years old now and doing great. I just had to do a double take. I found your blog searching for a drug in my ABVD regimen. I think this was a huge coincidence! Hope you are doing well and feeling ok. I am 3 years in remission and in nursing school. I am going into Oncology…paying it forward.
March 16, 2011 at 9:10 am
Margie
I hope all is well with you Rae and you are still in your happy bubble !
Thinking of you often and hoping and praying for a great recovery !
xo xo Margie
March 21, 2011 at 8:12 pm
Cathy
Dearest Rae…
I hope you are still in that happy bubble!!! I was thrilled to see your update! You are always in my thoughts and prayers!
Love,
Cathy
March 31, 2011 at 6:58 am
Melanie Pierce
Hi Dear Friend! Life has thrown me a few curves over the past year. Thoughts of you came to me a bit ago. I have a new computer and did not have a link to here. Took me awhile to find you again! So happy to hear you are still with us!
Sounds like this nasty c word is somewhat at a halt! Wonderful news. Please shoot me an email so we can catch up! Thinking of you today! Melanie:)
April 1, 2011 at 5:36 am
KerryAnne
Hi Rae I’m so happy for you that you’re keeping on top of this you have so much courage and you inspire me very much. Take care and keep hanging in there….sending big bear-hugs from down-under! xx
April 8, 2011 at 5:46 pm
Patches
Hey, Rae!
That’s the purtiest X-ray I’ve ever seen, girl … yayyyy, for you! How are you doing now?
Lotsa love and big hugs,
Patches
xox
April 8, 2011 at 9:35 pm
Sherry a/k/a Krestiekrew
Sorry to have been so ‘delinquent’.. much going on here …. I am glad you are getting good news and hope it continues even with the ‘glitches’ you have had. I may be needing to learn the ‘fight dance’ from you… nodule in left lung. Found early, no lymph nodes involved .. go back for scan in June, too small for Doc to do biopsy, said didn’t think he could hit it w/needle ws so small. good part, it is smooth walled, bad part he is not ruling out the monster yet….I am determined to learn the ‘steps’ from you. and am still hoping for good news in June. I am so glad you have good reports even with the infection glitch. more later via another route…LOL!!
April 17, 2011 at 1:20 am
Mistybug
Rae, thinking of you as I often do…glad to read that things are finally looking up (mostly)…I’m relieved any bit of good news as you probably are yourself. Also glad to see you in good spirits and hanging in there, I know it’s been a long haul and that you must have bad days but to still be cracking jokes and making everyone smile…well, not everyone would still be doing that after all this time. Just wanted you to know that you cross my mind often and I continue to wish for strength and humor to carry you through whatever life brings you. Hugs always, Misty
April 17, 2011 at 8:31 am
Patches
Dang it. Something messed up when you posted April 13th, Rae … I always check all boxes to be notified but wasn’t this time.
Lunch and a shopping spree with your favourite sister? You lucky gal, you! Will you let us know what you buy? I love shopping vicariously … it’s just as much fun and a whole lot cheaper. Ah ha haaaaa.
Love ya, Rae,
Big hugs,
Patches xox
April 28, 2011 at 8:42 pm
Robyn
Enjoy your very well deserved “girl bonding” day (that’s what my sis and I call it lol)
Have a wonderful day together Rae – after the last few months you sure do need it
love and hugs from Sydney
Robyn x
May 2, 2011 at 11:02 pm
Robyn
((((((((((((big gentle hugs Rae)))))))))))
a huge disappointment for you
just know we’re all thinking of you and keeping you in our thoughts & prayers
love
Robyn x
May 3, 2011 at 10:21 am
Patches
Aw, Rae, I am so danged sorry that Yondelis pooped out on you. What a low blow that is. But maybe, just maybe, there’s another miracle drug out there with your name on it that one of your doctors will find out about soon. That’s what I’m hoping for!
Lotsa love and big hugs,
Patches
xox
May 3, 2011 at 5:38 pm
Margie
Rae, loving thoughts and prayers are with you at this time !
We will all be praying for that miracle drug !
You have come so far, you are not done yet !
xo xo xo Margie
May 8, 2011 at 12:06 pm
Sherry a/k/a Krestiekrew
OMG!! What a shocker for you .. and for me to read since all has been going good for so long. … just all the more reason to find that BUBBLE and hang on for all it is worth and find yet another solution. You are the best I know at hanging on and finding new things to try, so don’t give up now. I know you have a million questions for that doc, how, why, etc;. I pray you find answers you want and need from him and possibly another solution.
Most of all I send you tons of love, prayers and hope and wish you a Happy Mothers Day. let me hear from you please.
May 8, 2011 at 1:37 pm
MoJo
I’m so sorry to hear this, Rae. You have been fighting such a courageous battle for so very long, just to have this happen now. You absolutely have to keep fighting that battle. More so now, than ever. My thoughts, prayers, and best wishes are with you and forever, sweetie. We all love you.
May 8, 2011 at 2:19 pm
Pam
Rae you have been an inspiration to all of us.. If there was any way any of us could help find a miracle for you..it would be done..In the meantime know that a lot of prayers are coming your way..you’ve come to far to lose this battle.
Hugs,Pam
May 8, 2011 at 2:40 pm
DoBeCalm
rae, please know we all have you in our prayers dear lady. You have inspired us with your courage and spirit throughout your battle. You will always be an important part of our lives. With much affection I am sending you tender loving thoughts. Prayers and Love Always…DoBe
May 8, 2011 at 2:46 pm
may
Happy mothers day! i was just here a few weeks ago to check in on you. and then i come back to see this news. take care of you sweetie and know that we all love you and are thinking of you always. hugs and prayers.
may
May 8, 2011 at 2:50 pm
Mistybug
Ditto what everyone else says…thinking of you and keeping my fingers crossed that it all turns out well. Misty
May 8, 2011 at 7:04 pm
DuckyJazz
So sorry to hear that the program didn’t work for you, but as others before me said there is a program out there that has your name on it.
You have fought so hard and I know you will find the strength to keep fighting. Prayers and hugs going out to you. Betty
May 8, 2011 at 7:33 pm
Roye"Beth"
Hello sweetie, just wanted to give you a (((hug))) and say you’re in my thoughts and prayers.
My brother was recently diagnosed with lung and brain cancer, I so hate this horrid monster.
Love & hugs,
Beth
May 8, 2011 at 10:41 pm
Joanne
Many thoughts and prayers have been and will continue for your health. Keep up your high spirits – I believe that is what has sustained you thus far. Praying for a cure and a miracle for you.
Hugs,
Jo
May 9, 2011 at 2:57 am
Mark
Hi Rae,
You have been on my mind for some time now. I lost the link to your blog.
Hang on in there lady.. We are all thinking of you and you are in my prayers.
Hugs to you my friend.
May 9, 2011 at 12:34 pm
Carol (CarolJustCarol)
Hi Rae. You are always in my thoughts and prayers. When a door closes another will open. Stay strong and know that many people care about you and are praying for you. We’d do more, but prayer and kind words are all that some of us have to offer to you.
May 9, 2011 at 5:30 pm
YorkiesFour
Please know that you are in my thoughts and prayers always. You have been such an inspiration to all of us. Keep up the fight and stay strong as you face this new hurdle.
May 9, 2011 at 7:06 pm
Debbi (aka Lavender Tabby)
Gentle Hugs.
Keeping you in prayer. ♥
May 9, 2011 at 8:33 pm
marie
There are so many miracles that happen every day and i’m praying you are going to be one of those miracles. Cancer takes every bit of fight to conquer it and if anyone can beat it you can. Prayers and Hugs to you my friend.
May 9, 2011 at 11:42 pm
Kathleen
My thoughts and prayers are with you always and I am praying for a miracle for you.
Never say never
May 10, 2011 at 8:33 am
Rosebeenut
Dear Rae,
I just want to add my name to the long list of those thinking of you. I am always encouraged by your attitude and I hope things will ease for you. Thank you for keeping us updated. Prayers go out to you always. Love and hope – rose
May 10, 2011 at 10:25 am
rae
wow, hi everybody!
yes, I’m not following up on my intention, to answer your comments, very well, am I?
It warms my heart and spirit to see you stop by, to offer encouragement, to tell me you think of me. I want you All to know how good it feels to see your familiar names. Thank you so much
I’m doing my best to remain positive, to focus on the present and make it positive.. but it can be hard, at times, to avoid veering off into fear of what the future holds.
~ rae
I realized last week that I have to go through it when it happens..in order to find my way out.
I found my way out, thankfully. Now? One surefooted step at a time without stumbles, I hope. This treatment Will Work.. and I will find my happy Bubble again
May 10, 2011 at 2:41 pm
Pam
Ahhh A post from you made my day a bit brighter Rae.. i so hope your “happy bubble is right around the corner
May 10, 2011 at 2:55 pm
Sherry a/k/a Krestiekrew
May 10, 2011 at 3:05 pm
Sherry a/k/a Krestiekrew
one more…. I thank you for posting what needle biopsies cause, I went and looked and my first thought was ‘OH —-!’ This will go on my dr’s question list!
May 10, 2011 at 3:09 pm
Patches
Rae! Rae! I want to know what you bought on your shopping trip with your sister! LOL.
Lotsa love,
Patches xox
May 10, 2011 at 7:41 pm
Scoot
Hiya Rae!
So sorry to read that the trial did not work out
At least yu have gained another “resource” person…he sounds like a wonderful doc. Hoping the Navelbine will go to work on those nasties, and that you don’t have to do the daily injections. Hugs and hope winging its way to you!
Scoot
May 10, 2011 at 11:35 pm
Robyn
Hi Rae – just catching up on your news and glad Dr Charlson was able to add Hope into the mixture with everything else and just know we’re all thinking of you and popping back here to check how things are going
May your happy bubble be bright and shiny always
Robyn
May 11, 2011 at 12:34 pm
Roye"Beth"
I’ve watched that adorable doggie tease video, isn’t that doggie just so cute, I love him/her. And Rae you’ve made me smile with the good news, I’m so happy you’ve found a fantastic Dr. in Dr. Charlson. And I’m so grateful he’s given you (and us) hope.
hug,
Beth
May 11, 2011 at 3:54 pm
Patches
Go, Rae! Go, Rae! Go, Rae!
Huggies,
Patches xox
May 11, 2011 at 5:24 pm
kath
Rae,
Add me to the list of prayers coming your way girl !!……..You are an inspiration to us all and just remember miracles happen everyday…
hugz !
May 13, 2011 at 2:41 pm
pimms
Have been thinking about you recently and wish you all the best in your fight.
May 13, 2011 at 8:43 pm
Joni
Not sure what I can say that hasn’t already been said Rae…but I wanted you to know that you continue to be on my mind and my prayer list. Sending you big luv and get well vibes and thanking you for always being an inspiration to others even on your darkest days…xo I wish you nothing but the best of everything!
May 13, 2011 at 9:14 pm
Angeldove
Rae, please know that prayers are being said! You truly are an inspiration! Keep up the fight, but always take time to rejuvenate and slide into your happy bubble!
May 13, 2011 at 9:17 pm
Sandy
What do add to what everyone else has said….nothing! You are an inspiration to all with your bravery and grit. Keep on fighting Rae you do it with style.
May 15, 2011 at 11:43 pm
David
Rae, I think of you often, you are in my prayers♥
May 21, 2011 at 4:30 pm
Pam
Just typing the words you read so often.. thoughts and prayer coming your way..God has to admire your awesome spirit
June 1, 2011 at 6:50 am
Jane
Hi Rae! Just wanted to add my name to the list of those praying for you. You are such an inspiration to so many.God bless you. Praying for peace and strength – and of course healing. Hugs, Jane
June 6, 2011 at 8:32 am
Angeldove
Rae, just wanted to stop by to let you know that prayers continue to be said! I pray that your new doctor will be a true God-send!! :big hug:
June 15, 2011 at 12:11 am
Scoot
Rae…Have had you on my mind lately. Just wanted you to know you are in my daily prayers, sweet lady.
Huggers,
Scoot
July 8, 2011 at 7:53 am
KerryAnne
Hi Rae….I’m thinking of you and keeping you in my thoughts and prayers always
Hugs, KerryAnne x
July 8, 2011 at 9:49 am
Patches
Ra-aaaaeeee .. come out, come out, wherever you are! How are ya doin’, girlie?
Biiiiig hugs,
Patches xox
July 8, 2011 at 6:56 pm
rae
oh man!
I didn’t realize how far behind I’ve become here
I certainly hope that I haven’t worried you all.. you’ve been so attentive and then I just fall off the face of the earth.
I’ll update here next week.. hopefully by July 13.
I will wait until after my scan, which is on Monday
If you find that you have some extra-ripe positive vibes laying around.. send em in my direction
I’ll put em to good use
July 8, 2011 at 10:24 pm
Patches
* Makes mental note (and sticky note on desktop) to be ready to bug the hell outa Rae, if haven’t heard anything by July 13. *
Love ya, Rae!
xox
July 8, 2011 at 10:27 pm
Patches
Oh, and I’ll be vibing the livin’ heck right outa you, meanwhile. LOL
July 9, 2011 at 5:43 am
Robyn
positive vibes winging their way straight to ya Rae!
Robyn x
July 14, 2011 at 7:53 pm
Angeldove
Patches . . . are you doing your job? It’s the 14th! How’s the buggin’ going?
Rae, positive thoughts and prayers are being sent your way!!
July 14, 2011 at 7:59 pm
Patches
Ah ha haaaa. Angeldove, I was giving Rae one day of grace … tomorrow I start the bugging.
July 14, 2011 at 8:05 pm
Sherry a/k/a Krestiekrew
…. girl, I am at a loss, and know what you have been feeling re: the lungs because somewhere down the line I am facing the same thing from a different problem. I think I am resigned then…. I find I am NOT! I have hopes that this new chemo can and will help you and here’s hoping it does not make you sick as some of them can. I am as always here for you and sending good thoughts, vibes and prayers your way. look for a pm ….tons of hugs girl, tons of them.
July 15, 2011 at 2:26 am
Mark
Hang in there Rae.. Hope to hear some good news from you in the near future.
July 15, 2011 at 7:38 am
Energie
Dearest Rae, thoughts and prayers are being sent your way!
Hugs, Energie
July 15, 2011 at 7:52 am
Roye"Beth"
Hi sweetie, thinking of you and definitely sending some extra-ripe positive vibes your way. Will be waiting to hear the good news.
Giving you a big, tight, squishy hug. ((((((Rae))))))
July 15, 2011 at 8:00 am
Diane
Rae, I think of you often, and wanted to tell you I’m still using some tuts of yours for request tags, and get great compliments on them!!! Keep fighting, you’re a brave gal! Hugz, Diane
July 15, 2011 at 8:31 am
Patches
Yo, Raeniel … bug, bug, bug … ohhhhhhhh, bug, bug, bug bug-bug, bug! What’s happening, girl? Inquiring minds want to know. :p
xox
July 15, 2011 at 9:57 am
Margie
Prayers are with you always Rae !
xo xo xo Margie
July 15, 2011 at 3:22 pm
Joanne
Rae:
Gentle hugs, and many prayers being sent your way.
Hugs,
Jo
July 15, 2011 at 3:57 pm
Pam
Alwaya send a positive vibe your way and a lot of gentle hugs and prayers.
July 15, 2011 at 3:57 pm
Pam
Always send a positive vibe your way and a lot of gentle hugs and prayers.
July 15, 2011 at 4:30 pm
Kathleen
Sending a positive vibe your way and special prayers with you always
July 15, 2011 at 4:35 pm
JuneHoney
Hello my dear friend, you are thought of and in my prayers, Wishing you a sweet happy summer. Bless you…. June
July 15, 2011 at 6:29 pm
sunandfish
Dang it, Rae. I wish and hope something works for you. You are always in my thoughts and prayers. Stay positive, me sweets. And big hugs to you.
July 16, 2011 at 1:22 am
Rosebeenut
Rae – I think of you often and I’m sending big hugs and prayers your way.
And always………..always positive vibes to you Rae.
July 16, 2011 at 11:52 am
rae
thank you All
*Hey Front Porch people! *waves
for the squishy hugs and extra ripe vibes.. Diane still doin my tuts (you must be a masochist, Diane!! hahaa)
so many well wishes from so many happy, friendly familiar faces from near and far (hi Robyn!) .. from my old PSP haunts
Now, I think I may have misrepresented myself, above.. in the comments
I said I’d “update here by July 13″
I didn’t mean ‘here’ literally
My latest update is above, the last entry on the page (above these comments)
you silly gooses
July 16, 2011 at 12:03 pm
Mistybug
Always thinking of you and waiting in anticipation for every little positive thing, as I’m sure you are. Keep hanging in there, it’s gotta be a lot to deal with but it ain’t over till the fat lady sings…and I’ve only hummed so far! Biggest bug hugs
July 16, 2011 at 12:45 pm
Tall Pat from The Front Porch
With SO many of your friends surrounding you with loving thoughts and prayers….things are going to be much easier. Yes…all of your Front Porch buddies are in the group plus so many more. Remember to enjoy the flowers, the sounds of laughter, and music to soothe your soul.
Hugs..Pat
July 16, 2011 at 7:22 pm
Geri Litz
My prayers are with you Rae,may the good Lord watch over you
Hugggzzz
Geri Litz
July 16, 2011 at 9:42 pm
Patches
Silly gooses? That’s the nicest thing I’ve been called all day, Rae … thaaaaanks! Ah ha haaaaaa.
Lotsa love and big hugs,
Patches xox
July 17, 2011 at 11:28 am
Angeldove
I like being a silly goose!! Good to hear from you, Rae! I hope we didn’t bug you too much . . . it was actually that silly goose Patches! HeeHee! Good job, Patches!!
Always sending thoughts, prayers and love to you!!
July 17, 2011 at 7:46 pm
Patches
That’s twice in as many days that I’ve been called a silly goose … I feel so honored. :p
July 18, 2011 at 2:57 pm
rae
I like silly geese! hahaa
My kitty is the silliest goose ever!.. he makes me laugh every day, the silly goose
New update, above.. btw
July 18, 2011 at 9:25 pm
Patches
There’s a lot to be said for silly gooses .. and geeses, and let us not forget about the meeces. My puppy makes me laugh every day, too, Rae … though she’s seven, I swear she’s going through the terrible twos. There’s no end of the mischief she gets into.
Thanks, for pointing out that you’ve updated above … it failed to notify me again. Reality, is an OK place to visit but I don’t want to live there and I don’t want you to have to live there either, Rae but …
You know, I’ve given a lot of thought to my ‘end of life’ and when it will come for me, and how. There are things I should do and things I should say to loved ones, before my time runs out. There are things I’d like to say to those I don’t love, too. Bwahahaa.
They say, that we wouldn’t want to know when our last day is coming, or how it will be, but I wonder about that. They say, that we couldn’t handle it … but I wonder about that, too. Wouldn’t it be better to be prepared than to be completely shocked? I honestly don’t know, but I’m leaning toward knowing.
Have you polished off all of your fresh berries and whipped cream yet? You go, girl! ♥
Love ya, Rae.
Big hugs,
Patches xox
July 20, 2011 at 12:35 am
Robyn
hi Rae
i’ve been here, gone away, come back … words fail me when i need them most – typical! :S <husband would say "unusual" but pffttt to him
we're all here – and just know that we will all be keeping you in our thoughts and prayers Rae & always always close to our hearts
i remember long ago (in the days of tut testing) saying i'd like to send you some timtams … we must have been drooling over chocolate and cookies (go figure!) … i still want to do that – 'specially since i've now discovered that once they go up in an aircraft the calories disappear
(who knew calories came with their own lil parachutes?!)
i'd need an email with a postal addy to forward them to though … let me know if i can
have been trying for years to 'twinkle' my nose – would if i could Rae .. would if i could
big hug
Robyn x
July 22, 2011 at 1:25 am
Scoot
Just read the latest, and I’m praying the Votrient will kick butt! My very favorite doctor has just gone into Palliative care. Her hubby has been battling cancer for years, and statistically should have succumbed a long time ago. He’s a bit of a miracle, and I think you are as well! I’m thinking this will offer you a better and closer knit support system, and don’t think it is necessarily a “bad” thing.
Enjoy your whipped cream….sans berries if need be. Slather the butter on the sweet corn, and grab that joy with both fists! I’m making a “rabbit” nose; that is as close to twinkling as I can get
You’re still in my daily prayers.
Gentle hugs,
Scoot
July 23, 2011 at 1:49 pm
Sherry a/k/a Krestiekrew
Rae…. fingers crossed here and hoping for the best. I know the pressure from the tumor is nerve shattering at best not to mention the physical issues with it. I am sending you the pm today or this evening at latest…huggs gal, and all else I can send your way.
July 27, 2011 at 7:38 pm
Cathy from Front Porch Graphics
Rae,
I am sending many prayers and thoughts your way. You are an amazing person and if miracles do exist, I certainly wish that a big one will come your way. You are an inspiration and I hope that you know how many people truly care and are hoping for the best for you. Take care.
July 30, 2011 at 6:39 pm
Cathy
Dear, dear Rae…
I keep you always in my thoughts and prayers… I am praying there will be good results from the Votrient!!!
Sending you HUGE, but GENTLE hugs!!!
Cathy
August 5, 2011 at 8:52 pm
Angeldove
Rae, we’re here for you – silly geese that we are and we’re sending all the twinkles that we can!!
August 11, 2011 at 4:28 pm
FeistyRedhead
You were on my mind today, Rae. I stopped into the Porch today, something I haven’t done in quite awhile, to see if there were any updates on you. Sending you gentle hugs and caring thoughts.
August 14, 2011 at 6:58 am
Kathleen
Rae, you are always in my prayers.
I have just read your latest report those strawberries and cream sound good.
God bless you,and never say never.
August 14, 2011 at 12:06 pm
Sherry a/k/a Krestiekrew
…thinking of you my friend, I would love an update from you good – bad – or otherwise. I am sure it is rough right now, I hope the treatments are helping and that you are not getting ill from them. Prayers and good thoughts and huggs to you
August 18, 2011 at 1:41 pm
Tess
Just stopped by for a catch up.I am sorry its not good news.Keep up the fight dear Rae.
Love and hugs
Tess xoxo
September 10, 2011 at 5:36 pm
Scoot
Hiya Rae! Houston still in a severe drought and record breaking heat. Thought I would pop in and say hello. Was hoping to see an update….hope we hear from you soon. God Bless!
September 11, 2011 at 2:06 am
rae
hi Scoot.. and Everyone
Yes, I need to update but it’s been a harrowing week and I’m still gathering myself.
No, I don’t have great news to share
I’ll try to get something posted here by Monday (Sept. 12)
This summer has been a real zinger, as for weather. I can hardly bear to see what’s happening to you in the south, Scoot…and to the animals. Tragic.
I hope that you will have relief Soon!
warmest wishes
~ rae
September 11, 2011 at 12:21 pm
Pam
Just checking on you..hoping things look a bit brighter
September 11, 2011 at 12:45 pm
shayne
Hi Rae.
I have you in my prayers every night and when ever I think of you during the day.
I admire your strength and hope for the best for you in the know and the future.
((((((((((((((( BIG HUG ))))))))))))))))
Shayne
September 11, 2011 at 1:42 pm
Energie
Hi Rae, you are always in my thoughts and prayers!
Hugs, Energie
September 11, 2011 at 2:20 pm
Patches
Hiya Rae! I’ve been kinda hoping that no news is good news.
Lotsa love and a big hug,
Patches xox
September 11, 2011 at 6:24 pm
Scoot
Well…looks like nagging works…lol So happy to see you pop up on the board here:) Even though the next update may not be positive, you have a lot of folks who truly care about you.
Yep, we set an all time record for number of days over 100 degrees, and last good rain I had at my house was last January! Water mains breaking all over town, and one is right across the street from me. If only I could funnel it over to my parched yard. There is great concern about the migrating birds this year. I know a bunch of hummers made it because they are draining my feeders
I’ll be back around the 12th or so….whenever you feel up to filling us in.
Huggers,
Scoot
September 11, 2011 at 10:20 pm
mooneyedmarie
You are continually in my thoughts and prayers, and my heart, my tears are always with you. I have learned so much from your tuts, and now i’m learning what a strong and inspiring person you truly are. Never lose hope, my friend.
September 16, 2011 at 8:27 am
Robyn
Hi Rae – the weekend has come around again. Springtime here and the temperature is warming up. Time for bbqs and outdoor living – no more heater hugging for me … Thinking of you – always
big hug
Robyn x
September 18, 2011 at 9:15 am
Cathy
Dear Rae…
The temps are cooling waaaay down and the leaves are changing color here in northern Michigan. I guess I finally have to admit that summer is over. I wonder how it is where you are? How’s Melvin?
I think of you often and keep you in my prayers!!! Hope the Votrient is doing some good work!
Love and HUGE Hugs,
Cathy
September 18, 2011 at 3:44 pm
Scoot
Rae….have had you on my mind…again. I keep peeking in for an update….good, bad, or ugly, we’ll be by your side!
Huggers,
Scoot
September 19, 2011 at 3:05 am
rae
You all are so wonderful, sweet, warm, and caring.. *sniff*
I know I’ve been avoiding an update.. first promising an update while I procrastinate (as I did last week!) .. you’ll understand, tho
I know, I know! = just do it, rae
September 19, 2011 at 7:08 am
Patches
Hey, Ray … you procrastinate almost as well as I, the Queen of Procrastination, do. It’s an art you know .. not everyone can do it. :p
xox
September 19, 2011 at 9:08 am
Margie
Take your time Rae, their are times when we want to talk and times when not ready !
You have all our prayers coming your way !
xo xo Margie
September 21, 2011 at 3:40 pm
Scoot
No worries….we can wait until you feel up to it. I’m happy to see you pop in on the board now and then. Just know you have a ton of folks sending loving thoughts your way.
Huggers,
Scoot
October 16, 2011 at 10:31 am
Sherry
Hi my friend, I along with others would truly love to hear from you, good – bad – neutral or otherwise. We miss you and think about you, I am asked have I heard from you…
If you can please let us hear a peep from you. I have to schedule tests ugh! not looking forward to that! has me on edge, I know you understand what that is like no one else would or ever could. will drop back and let u kno results.
Prayers and thoughts for you Rae, and good wishes.
October 17, 2011 at 6:14 am
KerryAnne
Hello there Rae…I’ve been thinking of you too. I’ve been keeping you in my prayers and sending lots of warm thoughts your way…you are missed at the Porch.
Hugs KerryAnne xx
October 18, 2011 at 4:17 pm
Scoot
Hi Rae!
Just checking in for October. It’s “open winder day” in Texas….yay! Finally getting a break from the dreadful heat, though we are still in a terrible drought. Just wanted you to know you are cared about no matter what. Take care sweet lady!
Hugs,
Scoot
October 20, 2011 at 4:59 am
Katra
Rae, I read your post and my heart fills for you and the tears flow. Heck I wouldn’t be able to stir up a zen like you. You are some lady even though you protest it isn’t so.
My love and loads of warm hugs coming from me to you
October 20, 2011 at 9:01 am
Patches
Aw, {{{{{Rae}}}}} … I’m crying with you, too. You’re such a dear soul and I love you. Always will.
Big, big hugs,
Patches
xox
October 21, 2011 at 11:32 am
Sherry
TONS OF HUGS! Girlfriend, I am so glad to finally hear from you…little do you know, you and your bubble, attitude and all have ended up being my inspiration to deal with my ‘issues’ and there is no way to ever thank you enough. (trying to learn to ‘zen’) ;D
Even tho’ it isn’t ‘exactly’ what you wanted, or all of us wished for you, it is TIME, no matter if it is time in a bottle (remember that song?) – more snow to see, another birthday cake.. who knows? I also know it cannot be easy, yet, you find ways, strongest lady I know of…
ok, will be waiting to hear the next round of news from you. (actually I am gonna stop b4 I blubber all over your blog)
….oh, spearing the night nurse… I LOVE IT! ….will keep an eye out for a fancy, good quality spear to send to you via net.
October 21, 2011 at 12:03 pm
Margie
Wonderful news Rae.
Praying for the next results to be just as rewarding.
xo xo Margie
October 21, 2011 at 12:42 pm
Misty
Thinking of you today, Rae
October 21, 2011 at 4:06 pm
Pam
You have always been an inspiration..and always will be.. know we all think of you daily.
October 21, 2011 at 5:41 pm
Patches
Good News! Yayyyyyy! That’s like a breath of spring air, Rae .. thank you! Now, after this next round of ‘joy juice,’ let’s see lots more shrinkage … we’ll all work on that with prayers and vibes, big time! We can do it, Rae .. I just know we can and I want to see a picture of the snowman you’re going to build this winter, too! lol
Lotsa love and big hugs,
Patches xox
October 21, 2011 at 7:57 pm
mooneyedmarie
Crying with you too, but this time they are tears of joy, miracles do happen and i’m praying you’re going to be one.
My sister just had rounds of chemo and lost her hair too, she said the same thing you said, but then she said the only drawback was now she had to make sure her ears were clean, of course they are but that is her sense of humor and i couldn’t help but think of that when i read your post.
Prayers and ((((((hugs)))))
October 21, 2011 at 9:40 pm
JuneHoney
Hi there Rae, you are in my prayers along with my dear sister in law who is now going through chemo. May God Bless and take care of you . June
October 22, 2011 at 4:23 am
KerryAnne
Wonderfull news Rae! I bet you can’t wait to make that snowman and make snow-angels…I will keep that image in my mind whenever I think of you! Sending lots of positive and warm vibes from here!
Hugs KerryAnne
October 22, 2011 at 5:58 am
Sunandfish
Hi, Rae. I’m so sorry that you have to go through all of this. I am glad though that the latest test results showed a shrinkage of the tumor.
You show us how precious time really is and the determination of mankind to get as much as they can, even if it makes one sick.
I do think of you often and I’m glad we have people that keep up updated on the porch. You are always thought about by all of your PSP buddies. We miss you.
October 22, 2011 at 1:03 pm
MoJo
. . .rae? when i grow up, i wanna be just like you! your strength and fortitude just amazes me!! you keep hangin’ in there, hon—and we’ll all keep prayin’, too!!!
October 23, 2011 at 1:47 pm
Angeldove
Rae, I think we need to break out a can of your delicious dill pickles and celebrate!!
Thank you for keeping us updated! We think of you so often and wonder how you are doing and always, always . . . hoping for the best!
To come here and read this today . . . it moves me to joyous tears!
You are such an inspiration to all of us and I hope you know what a true joy you are and how fortunate we all are for you to let us be a part of your life . . .
I wanted to share something with you as it makes me think so much of you!!
A couple of nights ago, the temperature was going to drop and I had noticed one of the late blooms on my wonderful, old rosebush and I thought to myself, it won’t get a chance to bloom. It made me sad because of the beauty of the flower and the wonderful fragrance that it has, I knew all would be lost. We covered the whole bush with a sheet, hoping that it would survive, but when I pulled it off . . . there was no sign of the rose bud.
Today, I tried on a new pair of sunglasses and was amazed at the clarity. Colors really stood out and I was able to notice things that I hadn’t noticed before. I was outside in the yard and I wandered over to the bush. Suddenly, I noticed something on the ground, in the grass that I had overlooked before. I leaned down and picked it up and it was the rose bud, intact on it’s stem – just as if someone had picked it and laid it down. I was amazed that it was there, with its blooms intact and as I picked it up, I did notice that it was a little weak and wilted, but as I smelled of it, the aromatic fragrance was just as vivid as if it was still on the bush. I got a vase, filled it with water and slipped the beautiful rose inside. It is now sitting on the sunny sill of my porch, looking just as beautiful as one could imagine and the wonderful fragrance is drifting in the autumn air!
I had given my sister a garden stone when she was battling cancer and the inscription was . . . “Remember the hope that flowers bring”.
That was about 9 years ago and my sister still has the plaque in her flowerbed and always plants her flowers around it!
I will think of you as I sit beside my flower today – you both are such an inspiration!
October 24, 2011 at 12:00 pm
Joni
Rae…I’m so happy to hear of your tumors shrinking hun! Your mention of the snow totally put in perspective for me the coming of the seasons here. We have been complaining of the cold and dreading the coming winter season but after reading your joy at the witness of one more snow, I will never see it the same way again! God Bless you and keep you in his arms, just as Dr. Jazz did and I wish I could do too!
October 26, 2011 at 2:10 am
Cathy A.
Rae,
I am so thankful to hear that your tumors are shrinking. You continue to be such an inspiration with your positive attitude and strength. I will continue to send good thoughts and prayers your way and hope for the best.
Cathy.
October 30, 2011 at 11:27 am
tess
Dear Rae it was my birthday on the 20th October.I was delighted with the news you posted on that day!
You are truly a great fighter and i think of you often
Love and soft hugs
Tess xoxo
November 21, 2011 at 6:44 pm
Scoot
Wow….we have some good news? I was just happy to see you checking in, Rae! I had read this earlier, but just got my rear in gear to post. I’m totally amazed to read the tumors had shrunk, and you found your happy bubble again. I can only pray that this trend continues!
Funny about the hoop earrings…when my best friend lost her hair from chemo for breast cancer, I went out and bought her some really big ones. Not sure that she didn’t look more like a hooker than a pirate, but she liked them
Praise be, she has been cancer free for over six years now.
Thank you so much for letting us know what is happening in your life.
Huggers,
Scoot
December 19, 2011 at 4:14 am
Scoot
Wellllllllllll…tis just me again. I adore your snow globes; what a special thing for you. Wanted to pop in and wish you a peaceful and blessed Christmas!
God Bless,
Scoot
December 25, 2011 at 11:23 pm
Robyn
Dear Rae – a big hug from me to wish you & Bruce a Merry Christmas – thinking of you
Robyn x
December 27, 2011 at 1:52 pm
Tess
OMG way to go Rae.Wonderful news.
Heres to a Happy New Year.
Sending love
Tess xoxo
December 27, 2011 at 3:31 pm
YorkiesFour
I hope you had a wonderful Christmas Rae. Margie and I were trying to figure out one of your tags and how to make snow names. You are such a talented lady. I hope the New Year gives you true blessings of good news as we are all praying for you. Love and Hugs, Sandy
December 27, 2011 at 4:30 pm
Margie
Rae, The season brought the right blessings for you.
All the prayers sure help, but being such a fighter as you are, I would put that right on the top of the totum pole.
Such a great gift for the New year and to look forward to more shrinkage with every treatment.
xo xo Margie
PS Sandy is right,TRYING to copy your snow name. LOL !
December 27, 2011 at 4:32 pm
Sherry
OMG!! This is such good news…(H U G E grin) I know you are elated and waaaaay over the moon with this news. (doing happy dance for ya). Please give us updates as you can… here is hoping that the treatments don’t leave you feeling yucky and that you get more wonderful news…ok time to stop, it is getting drippy….LOL!! Sending tons of hugs your way, loads of good thoughts and lots and lots of prayers…
December 27, 2011 at 5:02 pm
Irishpoppy
Wonderful and inspiring news, Rae. Here’s hoping that the new year brings healing and recovery.
Love and light,
Poppy
December 27, 2011 at 6:21 pm
Mistybug
That’s such great news, Rae, Merry Christmas.
December 27, 2011 at 9:46 pm
Patches
20 -30%? Oh, hot diggity, Rae! That’s such gooooood news! What a great year 2012 is going to be … you go, girl! ♥
Lotsa love and big hugs,
Patches xox
December 28, 2011 at 1:55 am
Pat
Miracles DO happen. You are proof of that, for sure. As you said you will now begin the next steps, hopefully without stumbling. But even if you stumble, we are all here to gently lift you up and send you on your way, refreshed, restored, and ready to continue your fight until the cancer is beaten. I know you are a strong woman, and you could do all of this on your own, and come out on top, BUT….with a whole community of friends who love you…heck, go ahead and let us walk along with you on your journey. Many of us have beaten cancer, and I think one of the loveliest things to come out of the experience is watching one’s friends rise to the occasion. Good friends, casual friends, friends you don’t know very well…they will all come. SO, here we are. We have work to do, and we’re ready!
Hugs…..Pat from The Front Porch
December 28, 2011 at 2:11 am
Angeldove
Rae, what wonderful news!!!! Prayers will continue to be said for God to heal you and strengthen you each day!!
Merry Christmas!!
December 28, 2011 at 3:25 am
Kathleen
Rae, what wonderful news, miricles do happen and the power of prayer is very strong.
You are always in my prayers, God bless,
Kathleen
December 28, 2011 at 8:30 am
Mark
Hey Rae,
That’s great news to hear. May the new year bring you continued good news and give you more reasons to smile amid so many trials. You are a great example to us all.
Mark
December 28, 2011 at 11:18 am
AnnAdams3
SO EXCITED FOR YOU RAE!!! Prayers answered….and what a wonderful Christmas present. Keep up the good work….we will all certainly keep up the prayers. Hugs for you and for yours.
AnnAdams3
December 28, 2011 at 1:49 pm
Candy Hearts
So happy to hear your good news, Rae!
December 28, 2011 at 2:08 pm
Energie
Such good news!
Rae, I am so happy for you!!!
Hugs, En
December 28, 2011 at 2:15 pm
Scoot
Woot! What a marvelous Christmas present for you, Rae! It is so nice to come in here and find good news. Will keep you in my prayers and hope you have a big celebration on New Year’s eve!
Scoot
December 28, 2011 at 4:06 pm
pAM
Such wonderful and happy news..i believe you have brightened all our seasons so much more..HAPPY NEW YEAR!
December 28, 2011 at 5:52 pm
DoBe
Such wonderful news rae♥ Best news to start the new year. We celebrate with you with warm hearts. hugz DoBe
December 30, 2011 at 7:06 am
Robyn
oh wow Rae! what lovely news!
and what a great start to 2012
big hugs and a happy dance!! woooooooohooooooooooooo!!
Robyn
January 21, 2012 at 2:40 pm
Sherry
Hello my friend….where are you???
I need to hear from you ..(know u been making those snow angels you were wishing for…LOL) …cause I been watching the weather reports! anyway, some of us on the porch have inquiring minds and want to hear from ya…
Hugs and good thoughts …(btw, I managed to stop smoking 2 mos ago…wheeeee!)
February 14, 2012 at 1:00 am
Robyn
Happy Valentines Day Rae! what you up to? we miss hearing from you
hope to hear from you soon Rae – miss you!!
summer seems to have skipped us this year in Sydney … rain rain and more rain. James has left home to go down to Canberra … … Marcus finally got a parttime job and is continuing his uni studies … best friend just had a baby so doing the cross stitch sampler, knitting teddies, scrapbook photo album … putting together a baby hamper … cluck cluck cluck
February 14, 2012 at 8:31 am
Patches
Yes, Happy Valentine’s Day from me, too, Rae … from the snowy north! I’ve been huffing and puffing and trying to blow it all down your way. Is it working? lol
Lotsa love and big hugs,
Patches xox
February 14, 2012 at 9:06 am
Katra
Happy Valentines day Rae…we need to hear from you xxxxxxxx
February 16, 2012 at 5:32 am
rae
hi… sorry I haven’t updated. There has been lots going on the last couple of weeks and I will most likely have a summary soon.. maybe tomorrow (Feb. 17) .. depends on my meeting with Dr Jazz this morning and my emotions afterward. There *is* good reason that I’m awake, still, at 4:30 a.m.
February 16, 2012 at 10:07 am
Patches
So, it was you keeping me awake at 4:30 a.m. was it, my dear? Thaaaaanks, Rae … I needed that! I’m hoping for good news in your next update.
Love ya!
xox
February 16, 2012 at 11:50 am
Sherry
I hope some of the ‘lots going on’ has been stuff you wanted to do. I am hoping the summary is good or at least neutral … here is hoping your emotions will be on the up side after seeing Dr Jazz.. I – as will others that care about you – will be waiting to hear from you, hopefully with something positive… tons of huggs and prayers my friend
February 17, 2012 at 12:03 pm
rae
I have created a new page for 2012.. it is listed at the top of page as
‘My Battle ~ 2012‘